Our Story
THE STORY OF BAILIWICK FLAME
Hi,
My name is Emily and I am 13 years old. I thought it would be a really nice idea to create a homemade candle business as I love to make them. All my candles are created at home in my kitchen and are vegan and cruelty free which is very important to me.
I decided it would be a lovely idea to put 10% of my earned profits to a charity called Huntington’s Disease Association.
My family have been affected by this as I lost my Nana back in 2011 to this disease, I was only 4 at the time she passed away but I still remember her well.
Huntington’s Disease is a brain disorder that causes uncontrolled movements and loss of thinking.
When I was younger, my mum and I would go and visit her in a care home in Inverness - Scotland. The illness would cause her to throw sudden movements, and as I was only young this made me believe she was dancing and from there her name became Dancing Nana.
From this, I would very much like to fundraise to raise proceeds for Huntington’s Disease so they can improve support and care for patients living with this devastating illness.
I would like to believe that my Dancing Nana would be very proud of me working hard to create something that people will enjoy. I believe that candles and light can be a very uplifting presence for anyone who might need some positivity in their life.
I hope that you enjoy the candle essences as much as I do. I love how they fill up my home with happiness and special memories.
Emily x
Huntington’s Disease
For every Bailiwick Flame candle sold, we pledge to donate 10% of the profits to Huntington’s Disease Association UK.
Their aim is to improve care and support services for people with Huntington's disease, educate families and professionals, and champion people's rights.
For more info please see www.hda.org.uk
Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do). If you have Huntington’s, it affects your body’s nervous system – the network of nerve tissues in the brain and spinal cord that co-ordinate your body’s activities.
Huntington’s can cause changes with movement, learning, thinking and emotions. Once symptoms begin, the disease gradually progresses, so living with it means having to adapt to change, taking one day at a time.
Living with Huntington’s disease can be very challenging. Getting the right information and support is vital and we’re here to help.
Some facts about Huntington’s:
Huntington’s is not something you can catch; it is inherited. Every child conceived naturally to a parent who carries the Huntington’s gene has a 50% chance of inheriting it.
A genetic test can find out if you have the faulty gene.
You can live with the faulty gene for years without symptoms, but if you do have it, at some stage you will develop symptoms. Doctors cannot tell you when this will be.
Huntington’s disease affects men and women. It usually develops between the ages of 30 and 50, but can start at any age. If you develop symptoms before the age of 20, this is known as Juvenile Huntington’s disease.
Although there is, as yet, no cure, you can learn to manage symptoms more effectively to improve your quality of life.